Вие сте в: Начало // Всички публикации, За реформата // ?�??N�?????�??N????? ???�??N?N�????N? ?�?� ?????????�N�N????�???� ?�??????N�?� ???� ???�N�???�??N�??N�?� N? N�?�?????? ?�???�?�N?N�??

?�??N�?????�??N????? ???�??N?N�????N? ?�?� ?????????�N�N????�???� ?�??????N�?� ???� ???�N�???�??N�??N�?� N? N�?�?????? ?�???�?�N?N�??

?� ??N�?�N? ???� ????N�??????N�?? N�.??. ?�?�???�N�?�?�???�N�?� ????N�?�??N�??N? ?�?� ?�??N�?�???� ?? ????N�N�?�?�??N�?�?�?? / DG SANCO/ ??NS?? ?�??N�?????�??N????�N�?� ????????N???N? ??N�???�?????�??N�?� ????N??????�?????� N?N�?�N�?� ???? N�?�???�N�?� ?�?� N�?�??????N�?� ?�???�?�N?N�?? ?? N?N????�??N?N�?� ???� ???�N�????N?N�N�?� ?? N�NSN�N??�???� ?? ???�????N�?�???� ???� ?�???�?????�N�???? N�?�N??�????N?, ??????N�?? ???� ?�NS???�N� ?????�?�?�???? ?�?� ??N?N????� N?N�N�?�???� a�� N�?�?�?????� ???� ?�??. ??N�?�N?N�???�N�?� ?�N?N�???�?�??N?N�?? ??N� ??N???N�???? ?�??N�?????�??N????? N?N�N�?�????, ?�?� ???� N??� N?N�?�N�???�N� ?�??N�????, ???� ??????N?N� ?? ???� N�N?N?N� ??NS?�??N????�N�?? ??N?N�??N�???? ?�?� N??�???�??N?N�???�, ??????N�?? N??� ??N�?�?�?????�?�?? a�zN�N�N??????�N�?� N?N�?�N�?�a�? N? ?????????�???? ?�?�?�???�N????�???� ???� ???�N�?�, ??????N�?? N??� ???�??NSN�???�?�?? a�z??NS?�????N? ??NSN� ???? ?????�???????�?�N�?� ?? ?�???�?????�N�????N�?? ?�?�N�?�?????�a�?. ?? ?????�N�?? ?� ????-???�?�???? a�� N?N�?�N�?�N�?� ?�?� N??????�???�N�?�?�?�?? ??N�N�?�N� ???� N?N????�??N?N�?� ???� ?�??N�?????�??N?????N�?� ????N?N�??N�N?N�????, N???NSN�?�?�???? N?NSN? ?�??N�?�??????N�?� ????N�N�?�?�????N?N�?? ???� N�??N�?�N�?�, ?? N�?�?�?�???�??N�?�???� ???� ???�N�?�?�???� ??????????N?N�N�?�?????� ??N�????N�?�???� ?? ????N??????� N??�?�N???N????�???� ???� ???�???�???� ???� ????N�??N�???�N�??N?, ???� ?�??N????�N�N�???? ??N�?�??????, ???� ???????�?�?????�N�?? ???� ?�???�????N�?� N? N�?�?????? ?�???�?�N?N�??.

?�NS?? ??NS?�??N????�N�?? ???????�?????�N�NSN�?�?????� ?�??N�?????�??N?????N?N� ????????N??�N� ???? ?�??N�?�???�?????�?�???�???�N�?? ?�?�???? ?�?�?�?? ??N�?�??N?N�?�???? N?NS???�??N�?� ???� N�N�?? N??�???�??N?N�???� a�� ??N� ?�N???NS????N?, ?�?�?�???????�N�??N�?�????N? ?? ?�N�?�??N�??N?, ??NS???�N�?? ???�??N?N�????N?N�?� ???� ?�?s N??� ?????????????�?�?? ?�?� ??N�??N�?????�???� ???� N�?�N??�????N? ??N�?? N�N�N??????? N??�N?N�?�?? ???� ???�N�?� N? N�?�?????? ?�?�?�???�N????�????N?. ?s??????N??�N�N?N� ???�N�NS?????�:

-A�A�A�A�A�A�A�A�A� ???�???�N?N�???? ?�, N�?� N�?�??????N�?� ?�???�?�N?N�?? ?�?�N?N????�N� 36 ???�??. ?�??N�?????�??N�?? ?? N�?�N�????N�?� N??�???�??N?N�???�. ???� ?????�N� N�?�N?N�??N�?� 5 ???� 10 N�???�. ???�N??�?�?�?????�, ???? ??????N�NSN� ?? ?????�??????N?N�?????�N�?� ?? ?�?�N�?�?????�N�?? ???� N�?�??????N�?� ?�???�?�N?N�?? ?� ?????????? ????-N�N??????? N?N�?�N�?�??, ??N�?????�????N�?? N??�????N�?� ?�???�?�N?N�??. ?�?� ?�???�????N? ???�?�??N�???�N�?? ???� N�?�???????� ?�?�?�???�N????�???� ???�???�N�?�???� ???????????? ?�???�?�??N????�???�, ??N�N�?�N??????� ?? ???�N?????N?N�????N?N�, ???????�N�?? N??� ????N?N�?�???? N�??N�???� ?????�???????�?�. ??N�N??????? N??� ??N�??N�?????�N� ?? N????�N�???�?�??N?N�??, ??????N�?? ???????�N� ???� ?????�??????N?N�??N�??N�?�N� ?? ?�?�??N????�N� ?? N�?�??????N�?� ???� ?�?????� N?N�N�?�???�. ???�?�???? N??� ?? ???�N??�?�???????�N�?�?�N?????N�?� ??N�????N�?�???? ?? N�?????� ???�??N�?�???�?�?????�. ?? ?????�N�?? ?� ????-?�??N??? a�� ??????N????????� ?????�?� ?? ???� ???� ?�NS???� ??N�??N�??N�?? ?�?�N�?�?????� ?�?� ????????N�?�N�???�N�?� ?�???�?�N?N�.

?�N???N�???? N�?????� ???�???� ??N????????�?????� ???� ?�??N�?????�??N????�N�?� ????????N???N? ???� ???�??NS?�???? N?????N?N�?� N�???�N?, ???�N�?? N?NS?�?�N�?� ?�?�?�?????? ??????N�?�, N?N????�??N?N�?� ?? N�?�N?N?N�N???N�?�, ?�?� ???� ???????�???� ?? ???� ???�N�???�??N�??N�?�, ?? ???� ?�??N�?�??????N�?� ??N�??N�?�N????????�?�??N?N�?? ???� N????????�?�N?N� N?????N?N�?� ????N�??N�???�N�??N? ?�?� N�?�??????N�?� ?�???�?�N?N�??. ?�?�?�N�?� ?� ???� N?NS?�???�???�?? N?N??�??????N? ?�?� ??N???N�???? ?�??N�?????�??N????? ??N�?�?�???�???? ???� ????N?N�???????�N� ???? ???�??-?????�N�?�N�?� ??NS?�?????�???� ?????�???????�?� ?? ?�?�N�?�?????� ???� N�N?N�???�N�?� N�N??????� ?�???�?�N?N� ???�?�?�????N??????? ?????? N??� ?? ??NS???� ?�?????�N?N�, ???�?�?� ?? ?�?�???�NZN�?�?????� ?�?�???? ?�?�?�??.

?�?�???�N�?�?�????N?N� ????N�?�??N�??N� ???� SANCO ?Y?�???�?� ???�N?N�??N�?? ?s?????? ?�?�????N�???� N??????�N�?? ?�??N??????�?� ??N�?�?? ?�N?N�???�?�??N?N�??N�?� ?? N?N�?�N?N�????N�??N�?� ?? N?N�?�N�?�N�?� N? N�?�?�?�??N�?�???�N�??, N�?� a�zN??�?�?? ???�N�?? ??N� N�?�?????? ?�???�?�N?N�?? N??� ?�?�N??�?????�N�?? 36 ?????�???????� ?�??N�?????�??N�??, N�?? N�?�?�?? ?�???�?�N?N�?? ???�N�?� ???� N??� N�?�??????a�?. ?Y??-???�N�?�N�NS?? N�N? ???�N�NS?????�, N�?� ????N�?�????N�?�????N?N� ?�N�???? ???� ?�?�N??�?????�N�??N�?� ??N� ???�???�???� ?�???�?�N?N�, ?�????N??�N�?� ???� ???�N�?? ?????�???�?????� ?�?� ??N??????? ??N� N�?�?�?? ?�?�?�???�N????�????N?, ???�??N�?? ?? ?�?�N�N�N??????�????N?N� ????N?N�NS?? ???? ?????�??????N?N�?????� ?? ?�?�N�?�?????� ??N�?�??N�NSN�?�N� N�?�??????N�?� ?�???�?�N?N�?? ?? a�z?????�?�, ??NS???�N�?? N�?�?�??N�?�N�?� ???� ?�??N�?????�??N????? ???????? ?� ???�??N�?? ???�???�N�?????????�, N�?�???� ?? ?????�?�?�???�a�?. ?�-?�?� ???�N?N�??N�?? ??N�????????????, N�?� ??N�?�?� ?????�????N�?? 2008 ??. ?�??N�?????�??N????�N�?� ????????N???N? ??N�???�???� ??????NZ???????� ?�?� N�?�??????N�?� ?�???�?�N?N�??, ?� ??N�?�?� NZ???? 2009 ??. ?� ???�N�?�?�??N�?�???� ??N�?�????N�NS???� ?�?� ???�??N?N�?????� ?? N�?�?�?? N?N�?�N�?�. ?� ??N�?�????N�NS???�N�?� N??� ???�N?N�??N????� ??N?N????� N?N�N�?�???� N�?�?�?????� ???� ???�N�?�?�??N�?? N??????? ???�N�???????�?�???? ???�?�???????� ?? N?N�N�?�N�?�?????? N?N�?�N�N? N�?�??????N�?� ?�?�?�???�N????�????N?. ??????N�?�?? ??N�?�????N�NS???�N�?� ?� ???�???�N�?????????? ??N�?�: ???�N�?�?�??N�???�???� ???� ?�??N�?????�??N????� N�?�N�?�N�?�??N�???� ??N�?�?�?� ?�?� N�?�??????N�?� ?�???�?�N?N�??; N�?�?�N???N�N????�???� ???� ?�?�?�?�N�?� ???�?????? ?? Orphanet; ?�?�??NS?�?�??N�?�???� N�?�?�??N�?� ???? ???�?�N???N�?????�N�??N?N�?� ?? ????????N�?�???�N�?? ???� N�?�??????N�?� ?�???�?�N?N�?? ?? ???�?�??N????�N�???????�N�?� ???�?�N???N�?????�N�??N? ???� ?�???�?�N?N�??N�?�; ????-?????�NSN� ????N?N�NS?? ???? ?�?�???�N�N?N�???�N�?� N???N�?�N�??; N?NS?�???�???�???� ???� ?�??N????�N�N�?�?? ??N�???�?? ???� ?�??N�?????�??N????? ????????. ???�???� ?�?????� N?NS?�???�???�?? ?? EUCERD a�� ????????N�?�N� ???� ?�??N????�N�N�?? ???? N�?�?????? ?�???�?�N?N�??, ??????N�?? ?????????????�???� ??N�???�?�???�???�N�?? ?? ???� ??????NZ???????�N�??, ?? ???� ??N�?�????N�NS????N�?� ???� ????????N???N?N�?�. ?Y. ???�N?N�??N�?? ???�?????????? ??N�?�, N�?� N�?�N�?� ??N�??N�?�N? ???� ???????�?�???�??N�??N�?�???� ???� ????N�?�??N�?????�N�?� ?�?� N�N�?�??N???N�?�????N�???? ?�??N�?�???�?????�?�???�???�, ??N�???�N�?� ??N�?�?� ???�N�N� 2011 ??., ?? N??� ??N�?�?????� N�?�?�?? ????N�?�??N�?????� ???� N??� ??N�N�?�?�?? ?????�???�??N�?�?�???? ??NSN�N�N? ?�???�????N�?� N? N�?�?????? ?�???�?�N?N�?? N?????N�?�?? ??N�?�?????�?�N�?� ?�?� N??????�???????? ???????�?�?????� ???� ???�N�???�??N�?? ?? N�?�??????N�?� ???� N?NSNZ?�?�. ?Y??-???�N�?�N�NS?? ???�??. ????N�?�??N�??N� ???� SANCO ???�?�?�:

-A�A�A�A�A�A�A�A�A� ?�N??� ???�?? ???�N??�?�???????�N�?�?�N????�N�?� N�?�?�??N�?� ?� ??N�?�??NS??NS?�?�?? ???�??NS?? ?? ?????�??N�?????�N�?� ???? ??N�????N??�?????� ???� N�?�??????N�?� ?�???�?�N?N�??. ????N�????????N?N�N�?� ?? ?????�?�N�?? ???� ??N�??N?N�???�????N?N�?� ?? ??N�?�????N?N�?�??N????�N�?? ???� ???�N�?�N?N�???�???� ????????N� N??� ?????� ?�N????�??N�?� ???� ??N�???�?�?�???�, ??????N�?? ?????� N�N�N??�???� ???� N???NSN�?�?�?? ?�?�?�?????? a�� ???????�N�?� ?????�??????N?N�??N�???? ?? N�?�N�?�???�??N�??N�???? ??NS?�?????�????N?N�?? ???�???�N�?�???� ?? ???????�N�?� ???�N�?�N?N�???? ?�?� ????N?N�?????�???� ???� ??N�?�??????N�?� N�?�?�??. ?�?� ???�N�NS?????� ??N�?� ?????�?�????N? ???�??N�?�??NS?? ?? ?????�??N�?????�N�?� ??N�????N????? ?�?�???�N�N?N�???�N�?� N???N�?�N�??, ??NS???�N�?? ?�??N�?????�??N?????N�?� ????N?N�??N�N?N�???? ?????�?�???�N� ????N�???????? N?N????�??N?. ?zN� ?�??N�???� 2000 ??. ???? ????N�??????N�?? 2011 ??. ?�???? ?� ?????�N?N�???�?� 1342 ?�?�N????�?�????N? ?�?� N�?�???????� ?�?�???�N�N?N�???�. 61 ?�?�???�N�N?N�???� N???N�?�N�?? ???�N�?� ?????�N� ??N�?�???? ???� N�?�?�??N�??N?N�N�?�???�?????� ?�?� ?�?�N�?�?????� ???� ???????�?? 50 N�?�?�?�??N�???? ?�??????N�???�?�N?N�N�?�N??�???�N�?? ???�?? N�N�??????N�???? N�?�?????? ?�???�?�N?N�??. ?zN????�?? N�?????� 895 ??N�N????? ?�?�???�N�N?N�???�???? ??N�????N???N�?� N??� ?? ??N�??N�?�N? ???� N�?�?�N�?�?�??N�???� N? ???�N???N�?�????N?N� ??NS?? N�?�?????? ?�???�?�N?N�??, ???? ??N??� ??N�?� N??� ?? ?�N�?�?? ???� ???�??????N�???? ???�????N�???�????N?. ?� N�?�?�?? N?N�?�N�?� ??N�?�??N?N�??N?N� ?????� ?�?�???�N�?? a�� ??N?????N?N�N????�???� ???� ?�?????�?????? ???�?�?�N�???? N?N??�??????N? ?�?� ?�?�???�N�N?N�???�N�?� N???N�?�N�??, ???�??N�?? ?? ??N?????N?N�N????�???� ???� N�?�???�?? ????N?N�NS?? ???? N�N?N� ?�?� ??N??�???? ???�N�???�??N�. ?�??N�?????�??N????�N�?� ????????N???N? ?????????????�???� ???�N??�?�???????�N�?�?�N????�N�?� N�?�?�??N�?� ?? N�NSN�N??�???� ???� ???????? ?�?�???�N�N?N�???� N???N�?�N�?? N�N�?�?� ??N�???�??N�?? a�� ?�?� N�?�N�??N�?? ???????????? N??� ??N�???�?�?�???? 237 ???�??. ?�??N�?? ???? 50 ??N�???�??N�?� N? ??N�????N??�?????� ??NS?? N�?�??????N�?� ?�???�?�N?N�??, ?� ??N�?�?� 2011 ??. N??� ???�?�????N�?�???? 198 ???�??. ?�??N�?? ?�?� ??N�???�??N�?? ?? N?NSN�??N�?? ???�??N�?�???�?�?????�. ?�?� N�?�?�??N�?� ???� N�?�?�?? ??N�??N?N�???�????N?, ???�??N�?? ?? ?? ?????�?�?� ???� ???�N�?�N?N�???�????N�?? ?�??N�?�???� ??N�?�??N?N�???? N�?�?�N�?�?�??N�???�???� ???� N�?�????N?N�NSN� ???� N�?�??????N�?� ?�???�?�N?N�?? ??NS?? ?�??, ???�N�?? N??� ??N�?�????N�NSN�???� N�?????� ???� N?N�??N�?? ?? ??N?N????� N?N�N�?�???� N�?�?�?????�. ?�?�N??�???� ???????�?? 569 N�?�?????? ?�???�?�N?N�?? N??� N�?�????N?N�N�??N�?�???? ?? ?�??N�?????�, ???? N�?�?�N�?� ?� ???� N??� ????N?N�???????� N?NS????N?N�?�????????N?N� ?? ???�N�?�N?N�???? ???� ???�??????N�?�, N�NS?? ???�N�?? N�?�?�?? N�?�????N?N�N�?? N??� ??N�N????? N???NSN�?�?�????A� ?? N? ??N�??N�?????�???�N�?? ???� ?�?�???�N�N?N�???� N???N�?�N�??. ?zN????�?? N�?????� ?????� N????� N??�?�???�????, N�?� ?????�?�?�??N�?�N�??N?N�?� ?? N?N�?�N�?�N�?� ???� N�?�??????N�?� ?�???�?�N?N�?? ????N?N�?�???�?????? N�?� N??� ??N�?�??NSN�???� ?? ???�???�?�?�???� ??????N�???�N�?????�, ??N�??????????N�?�???� ??N� ???�???�N�??????????N?N�N�?� ???� N??� ???�???�??N? ????N�??N�???�N�??N? ?? N�?�?�??N? N???N?N�. ???�N??�N�?� N�?�?� ???? N?N�N�?�N�?�????N?N�?� 2020 ?� ???� ?�NS???�N� ??N?????N?N�?�???? ?????�??????N?N�??N�???? N?????N????�?? ?�?� ???????�N�?�N�?? N�?�?????? ?�???�?�N?N�??, ???�??N�?? ?? ???� ????-???�?�???? ??N� 200 ???????? N�?�N�?�???�??N�??N�???? N?N�?�??N?N�???�.

??N�?�N�?�N�?� ?? ?�NZ??N??�???�N?N�?? ??N�????NS?�?�?? N? ??NS?�??N????�N�?? N�?????�N????? N�?�?�???�?�?? ?�?� ??NS?�????N? ??NSN� ?? ??N�?�???????�N????�???� ???� N�N??????? N?N�?�N�?�???� ?�???�?�N?N�. ?�??????N�?�?�?? ??N� N�?�?�?�??N�???? N?N�N�?�???? N? ????N�?�N?N� ?? N??�N�?????�????N?N�, N?NSN? ?�?�??N�???�?�????N?N� N�?�?�??N�??N�?� N???????N�?� ??N?N�??N�???? ?�?� ?�??N�???�N�?� N? N�??N?N�??N�???� N�???�N�???�?�, N? N�??N?N�???????�?�, N? ???�N?N�N�N????? N???????N�????, N? Retinitis Pigmentosa. ???�????????N�?� ???? ?�N?N�?� ?�?�????????N?N�?? N??�: ?????�N�???� ???� ???�N�?�N�?�, ???�??????N�?? ??N�?�?????�N�???�, ???????�?????�N�???� ???� ?? ?�???�????N�??N�?�, ??????N�?? ??N�?�?????�N�???�, N?N�?�N�???�N�???� ???� ?�?�???�N�??N�?�, ??????N�?? ??N�?�?????�N�???� a�� ???????�N�?�N�?? ??N� N�N?N� ???� ?�???�?�N�?� ?�?� ?�???�?�N?N�??N�?�, ?�?� N�?�?�?? ?�???�?�N?N�?? ??N????� ?�?�????N�??N�NS??, ??N????� N�?�?�????N??�?? N�?�??; ???� ?????�N?N�??N�???� N???N�???�?�???�N�?� ????????N�?�???�, ???� ????N?N�?? N�?�?�N�??N�?�N�???�, ???� ??N�??N�??N�???� ??N??�N�??????N?N�?????�?????�N�???? ???�????N�????N????? N�?�??N�N�?????�, ???� ???�??????N�?? N??� ???�??N????�N�???�. ?�NS?? ??N???N�???? N�?�?�???�?�?? ??N�??N?NSN?N�???�N??� ??NSN????� ?????�???????�?� a�� 3 ???? 5 ????????????, N??�?�NSN?NS?? N? ?�????N??�N�?� ???� ????N�??N�???�N�??N? ?? ??N�?????????�?�, ?�??N�???� ?�?� ??N??�???? ???�?? ?�??????N�. ?z???�?�?� N??� ???�?�N�?�, N�?� ?????�?????? N�?�?�?? N�??N�?� N??� N?N�?�???�?�?? ??????N�???�N�??N�?? ?? ?????????�N�?�?�?? ?�?� N?NS?�???�???�???� ???� ??N�???�?????�?�N�????, ?�?�???�??N???, N???N�N??�?�????N? ???� ???�N�???????�?�???? ?? ?�??N�?????�??N????? ????????, N�?� ?????�?????? N�?�?�?? N�??????N�?�?�?? ?????�N? ????N?????N�??N�?�N� ?�??N�????????N?N�??, ??????N�?? ???� ?????????????�N� ???� ??N�N?????N�?� ?? N??�?�?????�N�??N�?� ?�??N�???? ?? ?????�N�?? ???� ???�N�???�??N�?? N? N�?�?????? ?�?�?�???�N????�????N?. a�z????N�?? ?�?� ???�N? ?�?�?� ???�N?a�? ?� ?�?????? ??N� N??????�???�N�?�?�????N�?� ???�?????�?? ???� ??????????N�?? ???�N�???�??N�N????? ??N�???�?????�?�N�????, ??????N�?? ?�N?N�?� ??N�?�??N?N�?�???�???? ???� N?N�?�N�?�N�?�. ?�?�N�??N�?? ?� N�?�??N�, N�?� ???�??????N?N�??N�?� ??N� ?�??N�?????�??N????�N�?� ?�??N�?�?????� ??N�????N�?�???� N?N�?�N�N? N�?�??????N�?� ?�???�?�N?N�?? N??� ???�?�?????????�?? N�?�?�?? N�??N�?�. ???�???� N? ????????N�?�???�N�?� ???� ?�??N�?????�??N????�N�?� ????????N???N? ?? N? N?N????�??N?N�?� ???� ?�??N????�N�N�??N�?� ???�??N�?�????N�?�?�N?N�???�????N�?� ??N�???�?????�?�N�???? N?N�?�???�N� N�?�N?N� ??N� ?�??N�?????�??N????�N�?� ??N�?�?�?�, ???????�???�N� ???� ??N???N�???? ?? ???� ??N??�???? ????????N�?�N�???? ??N??�???�?�N� N??�.

-A�A�A�A�A�A�A�A�A� ??N�?�???� ??N????� ?�?� N?N�?�N�?�, ?? ????N?N�?? ?????�?�?�??N�?�N�??N?N�?� ???�?�??N? ?�??N�????N?N�??, ??N�???�?????�?�N�???? ?? ????N?N�??N�N?N�???? ?� ???�???�NZN�??N�?�?�???? ???�?�???� a�� ???�?�?� ?? ???�N�NSN�?�?????�N�?? N??? ??NS?? N?N�?�N?N�????N�??N�?� ????????N?N�NSN�NSN� ???� ?�??N�?�???�?????�?�???�???�N�?? ???� ?�NZ??N??�???�N?N�?? ???�N�N? ???? ?�?�N�N�???�?????�??. ?????? ???�N�NS?????� ??N�?�, N�?� N�???�?? N?N�?�??????N�?�?�???? ?????? ?�?� ?�?? ?�??N�?�???�?? ??N�???�??N� ?� N?N�?�N�N�??N�?�?�, ???????�N�?? ?�NZ??N??�???�N?N�?? ?� ??N�?�??N??�???�N�?�?�N?N�???�?� ?�??, ?� ?????�N? N�?�?�N??�N�?�N�??N�?� N??� ???�???�NZN�??N�?�?�???? N????????�?�N�????N�??N�?�?�????. a�� ?????�?�?? ???� ??N�??N�???�?? ?????????? ???�N�?�, ???? ?�???? ??N?N�?�???�N� ?�???�????, ??????N�?? ??N????�N� ????N?N�NS?? ???? N�N?N�, ???�?????? N�?????�???� N????� ??N�??N�???�??? a�� N�?�N�??N�??N�???? ????????N�?� ????????N?N�NSN�NSN� ?? ??????N�?�N�N�?�, N�?� ???�??????N?N�??N�?� N?N�?�N�N? N�?�??????N�?� ?�???�?�N?N�?? ??????N�?????�N?N?N� ???�???�NZN�??N�?�?�???? ?????????? ??NS?? ??N???N�???? N?N????�??N? ?�?� N�?�?�?�???�??N�?�???� ???� ?�??N�?�?????�N�?� ?????�??N�?????� ???� ?�??N�?????�??N?????N? N?NSNZ?�.

?�???�N�?�N�?� ???????????� ?�, N�?� ???� ?�??N�?????�??N????�N�?� N?N�?�N�?� ?? ?�NZ??N??�???�N?N�?? ?�NS?�???�N�??N? a�zN?N�???�N??�a�? ?????�N�?�, ?�?�N�??N�?? ?????� ???????�N�?�???� ???�N�???????�?�???� ??N�????N�?�???� ?�?� N�?�?????? ?�???�?�N?N�?? 2009-2013 ??., ?????�N�?? ?� N�?�N�?�??N�?�N�???? N??�???? ?�?� ???�?�???� N�?�N?N� ??N� N?N�N�?�????N�?� N�?�?�??????. ?YN�?�??N?N�?�????N�?�?� ???� ?�NS?�???�N�??N? ?? EUCERD ?� ????N�. ?�?�?????� ??????N�?�???� a�� ??N�?�??N??�???�N�?�?� ???� ???�N�???????�?�????N? ??????N?N??�N�?�N�?????�?? N?NS???�N� ???? N�?�?????? ?�???�?�N?N�??. ??N? ????N??????? ??N�?�???? ?????�N?N�?� ?? ???�??????N�?� ???� ?�NS???�N� ??????N�???�???? ?�?�?????�???�N�?? ?? ?�??N�?????�??N?????N�?� N?N????�??N? ?? N�?�?�?? ???�N??????� ?? ???�N�?�?�?? ?????�??N�??N?, N�?� a�z?�NS?�???�N�??N? ?� ??N???NS???� ???? N?N�?�???�N�?� ?? ?�??N�?????�??N????? ???�?�??a�?, ?????�N�?? N??� ??NS?�?�?? ???�?�?????? ???� ??N�????N�?�???�N�?�, ???�??N�?? ?? ???� ??????N�???�N�????????N?N�N�?� ?? ?�??N�?�?�????N?N�N�?� ???� ???�??N�?�????N�?�?�N?N�???�????N�?� ??N�???�?????�?�N�???? ?? N�?�?�?? N?N�?�N�?�. ?�NS?�???�N�N????�N�?� ???�N�???????�?�???� ??N�????N�?�???� ?�?� N�?�?????? ?�???�?�N?N�?? ?� ???�N???N�?�???� ??NS?? ??N?????N?N�N????�???� ???� ???�??N�?�???�?????� ??N�??N�???�?�??N�?????�, ?????�??????N?N�?????�, N?N??�??????N? ?�?� ????N�?????�?�???? ?�?�N�?�?????� ?? ??????N�N�???� ???� ???�N�???�??N�?? N? N�?�?????? ?�???�?�N?N�?? – ???�???�N�??N�????, ??N�?????�???? ???�?�N�??N�???�N�???? ?? ???�???�N??�?�??N?N�???�???? ?�?�?�???�N????�????N?. ?YN�????N�??N�?�N�????N�?� N�?�?�??, ?�?�?�???�?�???? ?? ??N�????N�?�???�N�?�, N??� N???NSN�?�?�???? N? ??N?????N?N�N????�???� ???� ?�???????�???????�??????N�???? ???�?????? ?�?� N�?�??????N�?� ?�???�?�N?N�?? ?? ?�NS?�???�N�??N? N�N�?�?� N?NS?�???�???�???� ???� ???�N�???????�?�?�?? N�?�????N?N�NSN�, ?????????�N�N????�???� ???� ??N�??N�???�?�??N�?????�N�?� ???� N�?�??????N�?� ?�???�?�N?N�?? N? ???�???�N�??N�???� ????N�?�???�?�?�????N?N� N�N�?�?� N�?�?�N???N�N????�???� ???� N???N�????????????????N�?� ??N�????N�?�????, ???�??N�?? ?? ???� ?????�??????N?N�?????�N�?� N�N�?�?� ??N?????N?N�N????�???� ???� N??�?�N????�?? ????N?N�NS?? ???? ???�????????-???�???�N�??N�???? ??????N?N??�N�?�N�????. ?� ??N�????N�?�???�N�?� ?� ?�?�?�???�?�?? ????N�?�??N�??N�?�?? ??????N�???? ??N�?? ??N�???�?�???�???�N�?? ???� ??N�??N�???�?�??N�?????�N�?�, ?????�??????N?N�?????�N�?�, ?�?�N�?�?????�N�?? ?? N???N�???�?�???�N�?� ????N�?�??N�?�N�??N? ???� ???�N�???�??N�??N�?� ?? N�?�N�????N�?� N??�???�??N?N�???�, ????????N??�???�???� ???� ??N�??N�?�N????????�?�???�N�?� ?????�?�??N�?????�N�??N? ???� ?�?�???�N�??N�?� ?? ???�?�?�N?N�N�?� ???� N�?�?????�N�?� ?????�??????N?N�?????� ?? ??N�??N�???�?�??N�?????� ?? N?NS?�???�???�???� ???� N�?�N�?�N�?�??N�?�?? N�?�??N�NSN� ?�?� N�?�?????? ?�???�?�N?N�?? ?? ?�NS?�???�N�??N?. ??N�N??�???� ???� N??� ???�N�NS?????�, N�?� N? ???�N? ?�?�???�N�N?N�???�N�?� ?�?� ???�???�N� N�?�?????? ?�?�?�???�N????�????N? N??� ?�?�???�?�N�?�N� ???? ???�N�?�???�?� ???� ???� -A� N�??????N�???�?�N�?�?? ???�?????�NS??, ????????N�???? ???� ??NSN�???�N�, ???�?�?�N??�????N? ???�????N�, ??N�?????�???? ?????�??N??�?????�N�????, ?�???�?�N?N� ???� ?�??N??�, ??N?????????N?N�???????�?�, ?�???�?�N?N�??N�???� ?�???�????N?, ?�??N�?????�???�?�??N? N?NSN? ?�?�?????�N�?�N?N�???�???? ??N�??N�??N�?�???� ?? ?�???�?�N?N� ???� ?????�N?????.

?YN�???�???� N??�, N�?� ?? ?�NS?�???�N�??N? ???????�?? 400 N�???�. ??N?N??? ?????�N� N�?�?????? ?�?�?�???�N????�????N?, ??????N�?? N??� N�?�?�???????�N�?�?�???? ?? N? N�?�?�?�??N�???� ??N�????NS?�?�??N�?�?�????N?N� ???� ?�??????N�?�. ???�?�??N�???�N�?? ???� ??N�????N�?�???� ???�?�N�?� ???� N?N?????????N????�, ?� ????-N?????N�?? ?�?�??NS?�?�?�???� ?�?????�?�??N�?�????N�?� ???� N???????N????�N� N?N????�??N?N�?�. ?�?�?�????????N� ?????????? a�� ??N�?�??N??�???�N�?�?� ???� ???�N�???????�?�????N? ?�?�???�??N? ???� N�??N�?�N�?� N? N�?�?????? ?�???�?�N?N�??, ???�??N�?????�N� N???N?N�?�, N�?� ??N??� ??N�?� ???� ?� ???�??N�?�???�???? ????N?N�?�N�NSN�???? ?�?� ???�?�?�??N�?�???�???� ???� N�?�?�?????� ?�?� N�?�????N?N�N�?�N�??N? ???� ?�?�???�N�N?N�???� N???N�?�N�?? N? ???�N?, ?� ?? ?? ?�??N�?????�??N????? ???�?�??. ??????N�?�?? ???�???? ???� ?� ????N?N�?�N�NSN�???? N?N????? ?? ???�?? N�??N�???? N??� N?N?????N????�N� ??N�?�?????????�????N�?� ???? ??N�????N�?�???�N�?� ?�?� N�?�?????? ?�???�?�N?N�?? N?N�?�??N?N�???�. ?�N�N????� ?�?�???�N�?� N? ???�N? N?????N�?�?? ?�??N????�N�N�??N�?� ?� ???�N�?�?�??N�???�???�N�?? ???� N�?�????N?N�NSN� ???� N�??N�?�N�?� N? N�?�?????? ?�?�?�???�N????�????N?, N?NS???�N�?�?�?�?? N? ??N�??N�?�N�????N�?� ???� ?�??N�?????�??N?????N�?� ?�??N????�N�N�??. ?�?�N�??N�?? N??� ??N�???�???�, N�?� N�???�?? ?????? N�?�????N?N�N�?? N??� ???�???�N�?????????? ???� N??�???? ?�?� ????N�??N�???�N�??N?, ???? ?? ?�?� ???�N??�?�???????�N�?�?�N????�N�?� ?? ??N�??N?N�???�N�?�?�???�N�?� N�?�?�??N�?� ?? ?????�??????N?N�??N�?�?? ?? N�?�N�?�???�??N�??N�?�?? ???�?�??. ???� ????-???�?�?????�?�???� ?�?�???�N�?� N? ???�N? ?� N?NS?�???�???�???�N�?? ???� ???�N�???????�?�???� ??N�?�?�?� ??N� N�?�N�?�N�?�??N�???? ???�?�?????�N�??, N???N�?�?????�???�N�?? ?? N�?�?�N???N�N????�???�N�?? ???� ???�????????-???�???�N�??N�????N�?� ?�???�???�, ???�??N�?? ?? ???�?�?�??N�?�???�???� ???� ????N?N�NS???� ???? N�?�?�?? N?N�N�N???N�N?N�?? ?�?� ?�N�?�???�??????, ?�?� ????????N�?????�????, ?�?� ?�???�???? ?? N�?�N�????N�?� ?�?�???�???? ??N� ??N???N�???? ??N�?�??N�?� ???� N?N�N�?�???�N�?�.

?YN�???�??N�?? ?? N?N�?�N�?�N�?� ???� N�?�??????N�?� ?�???�?�N?N�??

?�?� ????N�N�??N�????N�?�, ??????N�?? N??� N�N??????? N?N�?�N�?�???? ???�N??�?�??N?N�???�???? ???�N�?�?�???�??N�???? ?�?�?�???�N????�????N?, ?�?�N?N????�N�?? ??N??????????? ??NS?�N�?�N?N�????N�?�. ?�?�N�??N�?? ???????� ??N?N�N�?? ????N�N�??N�???? N??� N�?�N�?�??N�?�N�???�??N�?�N� N�N�?�?� ?�??????N�???�?�N?N�N�?�N??�???�N�??, ?�?????�??????N�???? ???�N�??????????N?N�?�N�?�?�???? ?�N�?�????, ?� N�N�?? ???????� ????N�N�??N�???? N??� ?????�???? ?�?�?�???�N????�????N?.

http://www.porphyria-europe.org

??N?N???N??�???�N�?� ????N?N�N�??N�??N? N�???? a�z?�NZN??�??a�? N??� ???�N???N????� N�N�?�?� ??N?N???N??�???� ???�???�???�N�?�N�??N?, N�N�N???????N?N�?? ?? N�?????�???�N�?? ?? ????N??�???�N�?? ?? N�N�?�?� N???NSN�N�. ?�?�N?N�??N�?�N�?� ?� 1 ???� 3 N�???�N????? ??N?N???. ?�?�N?N????� ??NS?�?� ?? ?�?�????, ???? ?�?�????N�?� N??� ??N??????????? ????N???N�?�?�??, ?�?�?� ???� N??� N�???�???????� N�?�N?N�?? ?�???�????. ???????? ???????????� ?�?�N�?�?????� ???�???�N� ???�N�N????�??N�?????� ?�?� ?�??????N� ???? 30 ?? 40 ????????????. ?z??N�?????�?�????N�?? ???�??N�???�???�???� ?????�NZN�???� ??N??�N�??????N?N�?????�?????�N�?�?? ??????N�???? ?�?� ??NS?�???�??N?N�?????� ??NSN�N�N? ??N?N???N??�????-N????�?�?�N�???�N�?�, N?NSN�???�N�???�N�?�, ????N�?�N�?�?�???�N�?� ?? ???�??N�?�?�???�N�?� N???N?N�?�???�.

http://en.care-nmd.eu

??N�?�???� ??N????� ?�?� N�N??????? N?N�?�N�?�???? ???�??N�???�??????N�???? ???�N�N?N??�????N? ??N�?? ???�N�?�, N�?�N�?�??N�?�N�???�??N�?�N�?? N??� N? ??????N�?�N�N?N�?? N??� ???�N�????N????�???�?�???? ?�N�?�????. ?Y??N???N????�N� N??� ?? N�?�?????? ???�N�N?N�????, ???? N??� N�N�??????N�???? ?? ?�?� N�N??� ?�??????N�. ???�???�NZN�??N�?�?�???? N�?�?????? ?�???�?�N?N�??, ????N�?�???? ?????�N�?? ???� N??� N�?�?�?????�???�???�N�, ?�??N??? N??� ?????�??????N?N�??N�??N�?�N�, ?� ?�?�N�?�?????�N�?? ???�??-N�?�N?N�?? ?� ???�??????N�????N?N�??.

http://www.neuroped.eu

?�??N?N�??N�???�N�?� N�???�N�???�?� /??N?????????N?N�???????�?�/ ?� ??N??�N�??N???N?N�?�?????? ???�???�N�??N�???? ?�?�?�???�N????�???�, ?????�N�?? N??� N�?�N�?�??N�?�N�???�??N�?� N? ???�N�N?N??�????N? ?? N�N�?�??N?????N�N�?� ???� ??N??????? ???�N�?�N?N�???� ?? ?�????N�?�?�??N????�, ?????�N�?? ???????? ???? N???N�?�?�???�???� ???� ?�?�?�??N? ??N�???�, ???�????N�?�?�N??�, N�?�N�????N? ??N�???�, N�?�N�???�N�?� ?? N�?�??N�????N???N�???????�N�?� N???N?N�?�???�.

http://ecorn-cf.eu

?�???�?�N?N�N�?� ???� ?????�N?NS?? ?� ?�??N�??N??????�N�??N�???? ???�???�N�??N�???? ???�N�N?N??�?????�, ??N�?? ?????�N�?? N??� ???�N�N�N??????� ???�?? ?? N�NS???�????N�?� ?? N??� ???�????N�?�N?N�??N�?� N�N�?�?� ???�??N�???�??????N�???? ?? ??N???N�???�N�N�??N�???? ???�N�N?N??�????N?, ???�??N�?? ?? N�N�?�?� N???N�?�???� ???� N�?�N�????N? ??N�???�. ?�?�N?N�?? N�?�N??�?????�N�?? ?� N�N�?�??N????�?�??N�?�N�??N? ???� N�?�N�?�?? ??N�???�.

http://www.eurowilson.org

?�?�??N�N�?�?�????N?N� N�?????????�??N�???�?�N�???????�?? N???????N�???? ?� ?????????? N�N??????? N?N�?�N�?�???? ???�N�N?N??�?????� ?? ????N�?�N�?�?�???�N�?� N???N?N�?�???�, ?????�N�?? ?????�?� ???� ?�NS???� N�?�N�?�?�????, ?�???? ???� N??� ?�?�??N????�. ?�?�N?N�?? ?????�???????�?�N�?� N??� ?�?�?�?�??N? N�?�N�?�?�???? ???�?? ????N�?�???? N�?�?�???????�N�?�?�???�N�?? ???� N???????N�??????N�?�, ???�?? ????N�?�???? ?�????N??� ???� ?????�???�????N? N? ???�????N�????N?????N�?� ??N�??N�?�N????????�?�??N?N�?? /??N????�?�???? ?�?� ????-?�?�????N�?� N??�N?N�?�?? ???� ?�?�?�???�N????�???�N�??/.

http://www.ichnetwork.com clomiphene citrate shop, clomiphene citrate shop, clomiphene citrate shop, clomiphene citrate shop, clomiphene citrate shop, clomiphene citrate shop.

?�?�???????�N�???�N�???�??N�?� N??� ??N�???�N?N?N� ??NS?? ?�???�?�N?N�??N�?�, ??NS?�?�?�N�?? N??� ???� ???????????�?????? ???�N�N?N??�?????�. ?� N??�??N�?� ???�???�N�??N�????N�?� ?�???�?�N?N�?? N??� N�?�?�???�?�?�???? N?????N�?�?? ???�??????N�???�N�?� ???? ???�N�N�?????� a�� ??N�N�?????�?�, ?�???????�N�?????�???�?� ?�N??�???�?� ?? ??N�.

http://asso.orpha.net/TAG/cgi-bin/

EURODIS ?� ?�?�???�??N? ???� ???�N�???�??N�??N�?� ?? N�?�N�????N�?� ??N�???�?????�?�N�???? ?? ?????�?�N�?? ???� N�?�??????N�?� ?�???�?�N?N�??, ??N�?�??N?N�?�???�N????� ???�?? 29 ???�??. ??N�?�?�???�???? ???� ?�?? ?? ?????�NZN�???� ???�?? 450 ?�N???N�???�N�???? ?? ???�N�???????�?�???? ???�?�???????�????N?.

http://www.eurodis.org

EUROPLAN ?� ??N�???�??N�, ??N�???????�N�N?N� ?�?� ???�N�?�?�??N�???�N�?� ???� ???�N�???????�?�???? N�?�????N?N�N�?? ?�?� N�?�?????? ?�???�?�N?N�??, ???�??N�?? ?? ?�?� N�?�????N?N�NSN� ?? ???�N�????N?N�N�?�, ???�N�?? N�?�?�N�?� ?� ???� N??� ?????????�N�?? ????N?N�NS??NSN� ???? ??N�?�???�??N�??N?, ?????�??????N?N�?????� ?? ?�?�N�?�?????� N�N�?�?� N?NS?�??N�?�???�, ???�N�?�?�??N�???� ?? N�?�?�??N�??N?N�N�?�???�?????� ???� ???�?????? ?�?� ??N?N????� N�??N�???� ???� N?NSNZ?�?�.

http://www.europlanproject.eu

RARECARE ?� ??N�???�??N� ?�?� ???�N?N�?�???�???� ???� N�N??????? N?N�?�N�?�????N�?� N�N?????N�??, ???�N�?? ???�N??�?�?????� N�?�N?N�??N�?�N�?�, ??N�????NS?�?�??N�?�?�????N?N�N�?� ???� ?�??????N�, N???NSN�N�????N?N�N�?� ?? N�?�?????????�?�????N�?� ??N????�?�????N?N�?? ???� N�?�??????N�?� N�N?????N�??, ???�??N�?? ?? ?�?� N�?�????N?N�N�?�N�??N? ???� ???????? ?�?�???�N�N?N�???�.

http://www.rarecare.eu

EPIRARE ?� ??N�???�??N� ?�?� ??????N??�??N?N?N????? ???�??N?N�????N? ??N�?�?? N�?�??N??�?�N�??N�????, ?�N�??N�???? ?? N�?�N�????N�?�N????? ??N�???�?????�?�N�????, N???NSN�?�?�???? N? N�?�????N?N�N�?�N�??N?N�?� ???� ?�???�????N�?� ??N� N�?�?????? ?�?�?�???�N????�????N?, ???�??N�?? ?? N? ???�N�?�?�??N�???�N�?� ???� ???�N�???????�?�???? ?????�??N�?????? ?? N�?�?�?? N?N�?�N�?�. ?�?�?�N�?� ?� ???� N??� N?NS?�???�???� ?�??N�?????�??N????� ???�?�N�N�??N�???� ?�?� N?NS?�??N�?�???� ???� ???�??????, ??N????�?�???? ?�?� ??N??�????N�?� ???� ???�N??�?�???????�N�?�?�N????�N�?� ???�??????N?N�.

http://www.epirare.eu

EUROCAT ?� ??N�?�?�?�, N?NS?�???�???�???� N? N�?�?� ???� N??�?�N????? ???�???�?�N????�???�N�?? ???� ???�??N??????�N�?? ???� ??N�?????�????N�?� ?�???????�?�???? ??NSN�N�N? ???�N�?�N?N�???�????N�?? ?�??N�?�???� N�N�?�?� ?�???????�???????�??????N�?�?? ??????N�N�???�, ???�N??�?�?????�???� ???� ??N�?�??????N?N�?�?????? ?? N�?�?????????? ?? N�.??.

http://www.eurocat-network.eu

Отговори

Copyright © 2009 ФОРУМ МЕДИКУС. All rights reserved.
   
Designed by Theme Junkie. Modified by Magstudio. Powered by WordPress.